I have a podcast called Rare Connection. I am trying to connect rare disease patients with others with the same or similar conditions with it, educate medical professionals and the general public and hopefully find clinical trials for the 95% of rare conditions that don't have any FDA approved treatment. If you are interested in being interviewed especially if you are in a clinical trial now please get back to me. If you know are in a clinical trial and you can get the company to let me interview them that works also. I am trying to turn it into a nonprofit and need board members, If you are interested in joining me I want to hear from you also. My podcast is called Rare Connection. It is on my YouTube channel Rare Chef. I film it live so I will need an email address at some point so I can send a link.
video below
https://www.youtube.com/@Rare_Chef/streams
Audio below
https://www.buzzsprout.com/2204433