So You Have a Rare Disease… Now What?Being diagnosed with a rare disease can be shocking, even scary! When I was diagnosed with Narcolepsy Type 1, I was relieved to know what the source of the problem...Reactions0reactionsComments2 comments
Voting with a Rare DiseaseVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like the Americans with Disabilities Act (ADA) were enacted...Reactions0reactionsComments0 comments
When a Low Probability Feels ScaryI’m no stranger to autoimmune conditions. Let's take a look: I am among the roughly 1% of the population that has celiac disease, an autoimmune condition related to the consumption...Reactions0reactionsComments1 comments
How Exercise Kept Me Out of the Hospital Until I Was 26Editor’s Note: This article was written by Megan Barlow and originally appeared on our Cystic-Fibrosis.com community. I have always been active. Since I can remember, I’ve been involved in all...Reactions0reactionsComments0 comments
Finding a TherapistI’m a fan of therapy, but to be honest, I personally haven’t always found it to be helpful in the past. Perhaps I just hadn’t found the right therapist for...Reactions0reactionsComments0 comments
What is a SWAN?When your doctor suspects you have an illness, they may give you one or more medical tests to help them make a diagnosis. But what happens when the results fail...Reactions0reactionsComments0 comments
RareDisease.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on RAREDISEASE.NET, a Health Union ("Health Union" or "We") owned and operated website. For conflicts between the Promotional giveaway article...Reactions0reactionsComments0 comments