Living with DMD: A Caregiver's Guide to Daily LifeLiving with Duchenne muscular dystrophy (DMD) can bring many challenges each day. As a caregiver, you play a vital role in assisting...reactionscomments
Understanding Duchenne Muscular DystrophyDuchenne muscular dystrophy (DMD) is a rare genetic condition that causes muscle weakness and degeneration that gets worse over time. It is...reactionscomments
Diagnosing ANCA-Associated VasculitisGetting a diagnosis of ANCA-associated vasculitis can take time. The early symptoms often look like other, more common illnesses, so doctors usually...reactionscomments
Treatment for ANCA-Associated VasculitisSeveral medicines are used to treat ANCA-associated vasculitis. Treatment usually has 2 goals: first, to bring the disease under control, and then...reactionscomments
Demystifying Primary Immunodeficiency TreatmentPrimary immunodeficiency (PI) is a group of more than 400 chronic disorders, including many rare diseases, in which part of the body's...reactionscomments
What Is ANCA-Associated Vasculitis?ANCA-associated vasculitis is a group of rare autoimmune diseases. In these conditions, the immune system attacks the body's own small blood vessels...reactionscomments
Tracking Your Symptoms: How CIDP Progresses and What to ExpectIf you or someone you love has been diagnosed with chronic inflammatory demyelinating polyradiculoneuropathy (CIDP), the name alone can feel scary. But...reactionscomments
Your Guide to the CIDP Diagnosis JourneyIf you have chronic inflammatory demyelinating polyradiculoneuropathy (CIDP), you may have spent weeks or months searching for answers. Maybe your hands and...reactionscomments
Understanding Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP): The BasicsGetting a diagnosis with a name as long as "chronic inflammatory demyelinating polyradiculoneuropathy" can feel scary. It is normal to feel worried...reactionscomments
Overcoming Infusion Anxiety for People With Primary Immunodeficiency (PI)Living with primary immunodeficiency (PI) means your body has trouble fighting off infections. This is because your immune system, which is supposed...reactionscomments
Signs and Symptoms of Rare Kidney DiseasesRare kidney diseases can affect people of all ages and backgrounds. There are more than 150 different types of these diseases, and...reactionscomments
Treating Rare Kidney DiseasesMany rare kidney diseases currently have no cure. However, there are treatment options that can help. There are several factors to consider...reactionscomments
What to Expect: Your Guide to MAC Lung Disease TreatmentBeing diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex...reactionscomments
Mastering the Infusion: A Guide to Self-Administration and Port CareLiving with hereditary angioedema (HAE) means you must be ready for a swelling attack at any time. Learning to give yourself your...reactionscomments
The Future of HAE Care: Understanding Gene EditingHereditary angioedema is a rare genetic condition. It is often called HAE. People with HAE experience severe swelling in different parts of...reactionscomments
Beyond the Needle: Overcoming HAE “Infusion Fatigue”Hereditary angioedema (HAE) is a rare genetic condition. It causes sudden and painful swelling in the body. For many people, life-saving infusions...reactionscomments
Understanding Hereditary Angioedema (HAE)People with hereditary angioedema (HAE) may spend years searching for answers. The road to an accurate diagnosis can be long and difficult...reactionscomments
How to Start Your Own Advocacy GroupAdvocacy groups are dedicated to a specific cause. They are made up of motivated members who come up with plans to make...reactions3comments
Treating Primary Biliary CholangitisPrimary biliary cholangitis (PBC) is a long-term medical condition that impacts the liver. While PBC has no cure, treatments may help slow...reactionscomments
Complications of Primary Biliary Cholangitis: What to KnowPrimary biliary cholangitis (PBC) is a chronic condition that impacts the bile ducts in the liver. Although PBC primarily affects the liver...reactionscomments
