What to Know About Kidney TransplantsTreating rare kidney diseases begins with medicines and lifestyle changes. These methods aim to treat the underlying causes of the kidney disease...reactionscomments
Terms to Know When You Have Adult-Onset Still’s DiseaseEven if you have lived with adult-onset Still's disease (AOSD) for years, new terms can come up often. Whether you are new...reactionscomments
What Is MAC Lung Disease?There are many types of lung disease. Some lung problems are caused by genetic issues like cystic fibrosis. Environmental exposures like cigarette...reactionscomments
Asthma and Nontuberculous Mycobacterial (NTM) Lung DiseaseAn estimated 86,000 people in the United States live with nontuberculous mycobacterial (NTM) lung disease. And the number of people diagnosed with...reactionscomments
What If I Am Resistant to Antibiotics for MAC?As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs...reactionscomments
Nutrition for Lung HealthWhat you eat can play a big role in your lung health. Maintaining a healthy weight, partly through diet choices, can be...reactionscomments
What Is Caregiver Burnout?Living with a chronic condition can be exhausting. Caring for others also can be draining. People with chronic disease and their healthcare...reactions2comments
The Impact of Rare Disease on SiblingsA rare disease diagnosis affects the entire family. When a rare disease touches a child, parents become caregivers. Taking care of the...reactionscomments
What Is Power Posing?Striking a “power pose” means taking up a lot of space with your body – standing upright with great posture, legs wide...reactionscomments
Gene Therapy for HemophiliaFor more than 20 years, gene therapy has been evolving as a treatment option for people with hemophilia. Hemophilia is a rare...reactionscomments
Community Spotlight: Bleeding Disorders That Aren't HemophiliaInherited hemophilia is not the only type of bleeding disorder. Other bleeding disorders can appear similar to hemophilia but involve different abnormalities...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of...reactionscomments
Clinical Trial GlossaryClinical trials or studies have a language of their own. It helps to understand the common terms doctors use when talking about...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why...reactionscomments
ICD Codes: Why They Matter in Rare DiseaseThe International Statistical Classification of Diseases and Related Health Problems (ICD) is used worldwide to standardize the classification of diseases. It is...reactionscomments
What Is Gene Therapy?Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we...reactionscomments
Community Spotlight: Glycogen Storage DiseasesGlucose is an important sugar that bodies need for energy. The body packs small molecules of glucose into large molecules called glycogen...reactionscomments
