What Type of Doctors Treat Rare Kidney Diseases?The kidneys filter extra water and waste out of the blood and make urine. They also make hormones that help control blood pressure and trigger the body to make red... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Dialysis and Kidney DiseaseDialysis is a type of treatment for people who have kidney failure, also known as end-stage kidney disease (ESKD). Over time, people with rare kidney diseases can develop enough kidney... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Questions to Ask Your Doctor About Pompe DiseaseWhether it is you or a loved one who is diagnosed with Pompe disease, you likely have many questions about the condition. Even if you have been living with Pompe... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
How Are Rare Kidney Diseases Diagnosed?Many rare kidney diseases cause long-term damage. This damage can cause the kidneys to work less and less well over time. So, early diagnosis is key. The sooner you know... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is Adult-Onset Still’s Disease?Adult-onset Still’s disease (AOSD) is a rare type of autoinflammatory arthritis. An autoinflammatory condition occurs when the body’s immune system, which creates inflammation, does not work properly. In people with... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Nutrition and Exercise With Adult-Onset Still’s DiseaseAdult-onset Still’s disease (AOSD) is a rare type of arthritis that can cause pain and joint damage. It is often managed with medicines that work on the immune system to... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Pompe Disease and GeneticsPompe disease is a genetic condition. People with Pompe disease have changes in specific genes that impact how they break down sugar. These gene changes are called gene, or genetic... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is Power Posing?Striking a “power pose” means taking up a lot of space with your body – standing upright with great posture, legs wide, hands on hips, chin raised to the sky... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
How Do I Know If I Have Adult-Onset Still’s Disease?Adult-onset Still’s disease (AOSD) is a rare inflammatory condition that affects mostly the joints. But it can affect many other areas of the body too. AOSD is an autoimmune condition... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Gene Therapy for HemophiliaFor more than 20 years, gene therapy has been evolving as a treatment option for people with hemophilia. Hemophilia is a rare genetic disease in which blood does not clot... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
What to Know About Kidney TransplantsTreating rare kidney diseases begins with medicines and lifestyle changes. These methods aim to treat the underlying causes of the kidney disease or the health problems that arise from it... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Questions to Ask Your Doctor When You Have Adult-Onset Still’s DiseaseLiving with adult-onset Still’s disease (AOSD) can be challenging and sometimes confusing. Even if you have been living with it for years, new questions can always come up. Staying in... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Are Rare Kidney Diseases?In the United States, a kidney disease is considered rare if it affects fewer than 200,000 people. There are more than 150 different types of rare kidney diseases, and they... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Pompe Disease: What You Need to KnowPompe disease is a rare genetic condition that affects the muscles that connect to your bones and heart. It is also called glycogen storage disease II, acid-maltase deficiency, or acid... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Questions to Ask Your Doctor About Living With MACIf you have been diagnosed with MAC lung disease, you might have many questions that need answers. A lot of new information may be thrown at you during your doctor’s... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
How to Start Your Own Advocacy GroupAdvocacy groups are dedicated to a specific cause. They are made up of motivated members who come up with plans to make changes at the local, state, or even national... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is the Difference Between Still’s Disease, Juvenile Idiopathic Arthritis, and Rheumatoid Arthritis?Adult-onset Still’s disease (AOSD), systemic juvenile idiopathic arthritis (SJIA), and rheumatoid arthritis (RA) are all forms of arthritis that share many similar features. It can be hard to tell them... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What If I Am Resistant to Antibiotics for MAC?As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs develop a resistance to antibiotic drugs. When this... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is Caregiver Burnout?Living with a chronic condition can be exhausting. Caring for others also can be draining. People with chronic disease and their healthcare teams often experience burnout. Other caregivers, like family... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
What to Expect After a MAC DiagnosisBeing diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex (MAC) bacteria respond to prescription drugs (antibiotics) if... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments