Webinar: Moments of Mindfulness – A Patient's PerspectiveWhat do people mean when they talk about practicing mindfulness? What are they actually doing? How much time does it take? Do...reactionscomments
Applying for Disability WebinarApplying for disability benefits can seem like an overwhelming ordeal. Coping with a rare disease can make the process feel even more...reactionscomments
Webinar: Emergency Preparedness WorkshopLiving with a rare disease can mean that emergency room and primary care doctors are unfamiliar with your condition. This can make...reactions2comments
