People do not understand that fatigue is different from exhaustion.
Thanks, Erin.
It is good to have people around who understand the complexities of MG. After three years, this is the first flair I have had and it took me by surprise. There was no warning. This has made the fatigue even more difficult. It is just taking this one day at a time. I praise God for getting me through each day., I hear you. Like can be tiring enough, let alone when you have a flare up of a chronic condition like MG! Whew! And those flares can really knock you off your feet, can't they?
I know it's hard to plan ahead when you don't know what each day will bring, energy wise.
I do hope you can have a good week with much less fatigue!
Best, Erin, Team Member.
I have days that there is no explanation why I am fatigued. I slept well but in a few hours I just have to rest.
Then there are days that I have energy and feel like I did before I got MG. I try and do more than I should and am very fatigued the next day.
It is very sporadic and I never know what to expect from one day to the next.
I used to make a list of things to get done and just keep on going until I was finished. I miss those days., it's okay to make a realistic list and have no deadlines. It will get done when we can do it. It is hard to acclimate to, but learning to be gentle with ourselves is so important. - Warmly, Donna (Team Member)
Hi,
! I know you are an active member here and this post is from MONTHS ago, but I somehow missed it when you originally posted it.
And I think you bring up a great point. Fatigue (especially chronic fatigue) is very, very different from exhaustion. And it can be unrelenting and debilitating.
You definitely aren't the only member of this community dealing with fatigue.
How has your fatigue been lately?
Best, Erin, Team Member.
