This is not my child that has a Rare illness, It is me.

Hi, and welcome, !

While I wish you had no need of a community like this one, I am glad you found us. We know that living with a rare disease can be especially challenging for a number of reasons. If you have any questions, please don't hesitate to reach out. We're happy to help in any way we can.

Best, Erin, Team Member.