This is not my child that has a Rare illness, It is me.

Hi , I'm just reaching out to see how you're doing today. I hope you have found some helpful information and some support here. - Warmly, Donna (Team Member)

Hi, and welcome, !

While I wish you had no need of a community like this one, I am glad you found us. We know that living with a rare disease can be especially challenging for a number of reasons. If you have any questions, please don't hesitate to reach out. We're happy to help in any way we can.

Best, Erin, Team Member.