Hi there, I just saw your post and must first encourage you to get yourself to a medical provider ASAP if you believe that you are in grave danger. If your post meant that you are not yet able to get properly diagnosed, we do have an article on our site that might be a place for you to start? Unfortunately, we aren't medical providers here and so cannot give medical advice, but we can encourage you to advocate for yourself in your healthcare journey, and we can try to assist you with searching online for resources available to you. Please let me know if you think there's something I might be able to help you search for... I hope you'll find your answers soon. Hugs, Gina Miller, Team Member Here's the article I mentioned: https://raredisease.net/diagnosis