Tell us about your symptom and treatment experience. Take our survey here.
Elle Cole
Last Updated:
Personal Strategies – What routines, habits, or lifestyle changes help you avoid burnout or fatigue? (e.g., sleep, nutrition, mindfulness)
catlady51 Member
Last Updated:
when the monster fatigue or the everyday life concerns pile up on me i turn to my jigsaw puzzles. i'm a confirmed jigsaw puzzle addict, and i always have one going. i know what i have to do and what i want to do, and there's never enough time for it all. so sometimes i just have to sit with my puzzle. i also have one of those under the table exercise elliptical foot pedal things, that i can take advantage of. i always eat right and simply. i can't put a lot of energy into food preparation, so it's always homemade, never fried, and no meat. life is especially tough for us all, but we have to be tougher, and that means taking time to be good to ourselves.
catlady51 Member
Last Updated:
DonnaFA Community Admin
Last Updated:
Firebrand Member
Last Updated:
You're not alone 🤗
For some reason stress and anxiety have been doing a number on me this past year. I think for me it partially comes down to fear bc I'm getting older and the what ifs are coming to mind. I know it's needless to worry about what "might" happen bc that's wasted energy...but it's the thoughts of planning ahead. The worries about my health, my husband's..what if I become unable to maintain the house and bills bc husband hasn't got a clue..what if something happens to him, how will I manage and hang on to my home, how will I get healthcare, etc. is retirement even a possibility ? It's hard to manage anything when you struggle just to function. Not to mention the turmoil that our country is in which makes everything uncertain.
I try to maintain my sense of humor..find a reason to smile..to laugh but give myself that down time when things become too much.
I tell myself it's all in God's hands...take one day at a time. Things always have a way of working out.
All the best to you.
Hang in there !
❤️🤗🙏
Elle Cole Member
Last Updated:
Firebrand Member
Last Updated:
My husband still works but not sure how much longer he'll be able to. I've been disabled for 10+ years. I raised our children, managed household and finances.. basically everything besides my husband's job. He worked long hours. Then our middle daughter was diagnosed at age 11 with lupus and disabled by 18. My diagnosis was to come several years later and oldest daughter diagnosed after me. We barely managed financially and otherwise so we are way behind when it comes to retirement and not much of a way to save further than we do already. Then there's all that's happening in our country right now !!!
So I'm just doing the best I can .. keep on keeping on and leaving the rest in God's hands. Hugs and all the best to you on your own personal journey. 🤗❤️🙏
Firebrand Member
Last Updated:
Sometimes I just need a day where I absolutely shut down...no decisions to make, no work to be done, no conversations...just rest, sleep, eat, read, a movie or music. Sometimes the world gets too noisy. Silence is nice sometimes.
Elle Cole Member
Last Updated: