Community Members Share Their MAC Lung Disease Experiences...Navigating a MAC lung disease diagnosis can be challenging. There can be a lot of uncertainty and many questions that arise. It...reactionscomments
My Prurigo Nodularis Story...I was diagnosed with the above disease last year. It has a prevalence of around 3/10,000. The aetiology is unknown. It causes...reactions3comments
When There’s a Shortage of the Medicine That Keeps You Alive...I need 2 medications to survive. I don't mean it in the sense that my health would deteriorate faster. And I don't...reactionscomments
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand...
Hygiene and Chronic Illness: 5 Tips for "Lazy" People...Editor's Note: This article was written by Mikayla Bianchin, a Health Leader living with cystic fibrosis. Read more of Mikalaya's articles at...reactionscomments
How to Handle Insurance Denials and Limits...Finding out that your health insurance company has denied a claim can be frustrating and complicated. Your insurance company must provide you...
Medical Mystery Turned Into a Rare Disease Warrior...Josiah J is a wild spirited two-year-old who has familial cold autoinflammatory syndrome (FCAS). When I was pregnant with Josiah I developed...reactions3comments
Planning a Vacation With a Rare Disease...Summer is here! Time to travel to new places, experience local cuisine, and have some fun in the sun! Okay, easier said...reactions2comments
How Is X-linked Hypophosphatemia Diagnosed?...X-linked hypophosphatemia (XLH) is a chronic, progressive disease, so early diagnosis is important to stop symptoms from getting worse. XLH is diagnosed...reactionscomments
Michelle Fruhschien...Michelle here- aka Mamabear. My 3-year-old daughter, Hailey, was diagnosed at 8 months of age with a rare diagnosis, Jordan's syndrome, a...
How Exercise Kept Me Out of the Hospital Until I Was 26...Editor’s Note: This article was written by Megan Barlow and originally appeared on our Cystic-Fibrosis.com community. I have always been active. Since...reactionscomments
Living With a Rare Kidney Disease...Most rare kidney diseases last a long time. There is no cure, and they often do not go away on their own...reactionscomments
Preparing for End-Stage Kidney Disease...End-stage kidney disease (ESKD) is when your kidneys are barely working or have stopped working. This condition is also called kidney failure...reactionscomments
Yes, You Can Travel as a Dialysis Patient...When I got the news that my kidney function had diminished to the point that I needed dialysis, my heart sank. I...reactionscomments
What to Know About Kidney Transplants...Treating rare kidney diseases begins with medicines and lifestyle changes. These methods aim to treat the underlying causes of the kidney disease...reactionscomments
Terms to Know When You Have Adult-Onset Still’s Disease...Even if you have lived with adult-onset Still's disease (AOSD) for years, new terms can come up often. Whether you are new...reactionscomments
What Is MAC Lung Disease?...There are many types of lung disease. Some lung problems are caused by genetic issues like cystic fibrosis. Environmental exposures like cigarette...reactionscomments
Asthma and Nontuberculous Mycobacterial (NTM) Lung Disease...An estimated 86,000 people in the United States live with nontuberculous mycobacterial (NTM) lung disease. And the number of people diagnosed with...reactionscomments
What If I Am Resistant to Antibiotics for MAC?...As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs...reactionscomments
Nutrition for Lung Health...What you eat can play a big role in your lung health. Maintaining a healthy weight, partly through diet choices, can be...reactionscomments
