What Is MAC Lung Disease?...There are many types of lung disease. Some lung problems are caused by genetic issues like cystic fibrosis. Environmental exposures like cigarette...reactionscomments
Asthma and Nontuberculous Mycobacterial (NTM) Lung Disease...An estimated 86,000 people in the United States live with nontuberculous mycobacterial (NTM) lung disease. And the number of people diagnosed with...reactionscomments
What If I Am Resistant to Antibiotics for MAC?...As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs...reactionscomments
Nutrition for Lung Health...What you eat can play a big role in your lung health. Maintaining a healthy weight, partly through diet choices, can be...reactionscomments
What Is Caregiver Burnout?...Living with a chronic condition can be exhausting. Caring for others also can be draining. People with chronic disease and their healthcare...reactions2comments
Finding My Calling...I have always known I was meant to help others. It feels like an intense need to share my light and bring...reactions2comments
Webinar: Moments of Mindfulness – A Patient's Perspective...What do people mean when they talk about practicing mindfulness? What are they actually doing? How much time does it take? Do...reactionscomments
Try Walking in My Brace...Life with a bleeding disorder makes getting around a whole lot harder as I age. I have moderate hemophilia and consider myself...reactionscomments
Not Medically Fragile...My daughter was born with a rare form of muscular dystrophy called nemaline myopathy. She was three before we knew something was...reactions2comments
My MG Journey...I’ve always fallen down since childhood. Doctors didn’t know what I had. Never had enough strength to play kickball. Until I could...reactions6comments
Understanding Non-apparent Disabilities in the Workplace...About 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactions2comments
Erin Leibowitz...Erin Leibowitz is a writer and patient advocate who was diagnosed with metastatic pancreatic neuroendocrine cancer shortly before her 30th birthday. Neuroendocrine...
My Accidental Rare Disease Diagnosis (Part 2)...This is the second article in a 2-part series. Be sure to check out Part 1: New Symptoms, New Fears: The Beginning...reactionscomments
A Journey to My Authentic Self...I have always strived to see the silver linings or the good in every situation. My immune deficiency diagnosis of hyper IgE...reactionscomments
What a Caregiver Means to Me...I talked with an old friend from high school who just found out he has a rare disease about how much our...reactions4comments
Medical Review Board...The Health Union Medical Review Board is made up of board-certified healthcare professionals with extensive experience in their respective fields. They review...
The Power of the Words We Tell Ourselves...I didn't fully realize how much my physical health impacted my mental health until recently. Sure, I know I've struggled with depression...reactions5comments
SSI and Medicaid: Moving to a Place Based on Healthcare..."What do you mean I'm not eligible for Medicare?" I groan into the phone. "I'm on Social Security, aren't I?" At this...reactionscomments
Dusty Terrill...Dusty Terrill is a nature-loving and adventure-seeking travel advisor, rare disease advocate, writer, and research participant at the National Institutes of Health...
Frank Rivera...Frank was previously a health leader on RareDisease.net. I am Frank Rivera, a rare disease patient advocate, an Illumina Ambassador, A RDLA...
