Coping With Chronic Pain and Stigma...Many people with rare health conditions can manage their pain using over-the-counter or prescription pain medicines, physical therapy, and exercise. But some people experience “breakthrough” pain. This is pain that... By Editorial Team 3 min readBookmark for later
How Is Pompe Disease Treated?...Pompe disease is a rare, inherited disease in which the body cannot process glycogen, a type of sugar. People with Pompe disease do not make enough of a chemical in... By Editorial Team 2 min readBookmark for later
Common Tests and Tools for Diagnosing a Rare Disease...Incorrect or delayed diagnosis of rare diseases is common. Because so few people have a particular rare condition, doctors you go to may have never seen someone with your condition... By Editorial Team 4 min readBookmark for later
Applying for Social Security Disability Benefits...Living with a chronic health condition may make working impossible at some point. The symptoms of a rare disease can affect your ability to get your job done. When this... By Editorial Team 3 min readBookmark for later
Alternatives for Managing Chronic Pain...Chronic pain is pain that lasts for longer than 3 months. Some rare diseases can cause significant pain in the body. This leads people who live with chronic pain to... By Editorial Team 3 min readBookmark for later
How Is Fabry Disease Treated?...Fabry disease is a rare, inherited condition caused by a mutation in the GLA gene. This gene is found on the X chromosome. The GLA gene controls the alpha-galactosidase A... By Editorial Team 3 min readBookmark for later
10 Questions to Ask Your Doctor When You Are Newly Diagnosed...It is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis. Many community members on this site talk about... By Editorial Team 3 min readBookmark for later
What to Expect From Genetic Counseling and Testing...If you have a rare disease or one runs in your family, your doctor might suggest genetic counseling and testing. People get genetic testing for a variety of reasons. You... By Editorial Team 3 min readBookmark for later
How Is Neuromyelitis Optica Spectrum Disorder Treated?...Early detection and treatment improve overall outcomes for neuromyelitis optica spectrum disorder (NMO). The number and severity of attacks worsen the outcomes of the disease. Because of this, it is... By Editorial Team 5 min readBookmark for later
How Is Mucopolysaccharidoses Treated?...Mucopolysaccharidoses (MPS) are a group of rare genetic disorders that affect the body's ability to break down a particular type of sugar. These sugars are called glycosaminoglycans. When they build... By Editorial Team 3 min readBookmark for later
How Is Cystic Fibrosis Treated?...A complex medical condition like cystic fibrosis (CF) requires a complex approach to treatment. Medicines, vaccinations, enzymes, and airway clearance techniques all play a part in keeping people with CF... By Editorial Team 4 min readBookmark for later
What Is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a soldier returning from war or a victim of... By Editorial Team 3 min readBookmark for later
Welcome to RareDisease.net Stories!...At RareDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with a rare disease can be a challenge, but the more... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
Building a Caregiving Team: Finding In-Home Help...Life with a rare disease can require extra at-home help and support. This care varies by person and ranges from skilled hands-on work to running simple errands. Handling all of... By Editorial Team 4 min readBookmark for later
Help Center...You’ve come to the right place! Get answers to the most frequently asked questions about the inner workings of RareDisease.net, as well as the organization that powers it all –... By Editorial Team 5 min readBookmark for later
Community...Have a question? Post it in our forums and ask our community! Share your story or read about others living with a Rare Disease. PS. You can participate anonymously if... By Editorial Team 1 min readBookmark for later
Editorial Team...The Editorial Team works with its Medical Review Board and experienced medical writers to provide Health Union's Community Team with reliable, easy-to-understand information about a host of chronic health conditions... By Editorial Team 7 min readBookmark for later
