Finding a Therapist...I’m a fan of therapy, but to be honest, I personally haven’t always found it to be helpful in the past. Perhaps I just hadn’t found the right therapist for...Reactions0reactionsComments0 comments
Jessica Hanson...Jessica Hanson is a NYC-based actor, singer, yoga teacher, fitness instructor, social media manager, writer, blogger, autoimmune disease advocate, and cat lover. Jessica was diagnosed with celiac disease over eleven...
Ella Balasa...Ella Balasa is a patient advocate, consultant, and a person living with cystic fibrosis. She was diagnosed at 18 months old and has experienced countless hospitalizations since being a child...
Community Health Leaders...In order to stay up to date on the latest treatments, drug discovery, clinical studies, and how to cope with rare disease every day, RareDisease.net brings you frequent articles, points of view...
Medical Review Board...The Health Union Medical Review Board is made up of board-certified healthcare professionals with extensive experience in their respective fields. They review and ensure that our content is accurate and...
Community Team...Welcome to Health Union's Community Team. Our Community Team is made up of a diverse group of employees of Health Union who bring you engaging, accurate information about living with...
What Is Gene Therapy?...Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we will be, and if we are prone to...Reactions0reactionsComments0 comments
Workplace Considerations...Everyone deserves to be treated fairly at work, including people with chronic medical conditions or disabilities. It is not only the right thing to do – it is the law...
Suicide Prevention...If you or someone you know is in crisis or considering suicide, please contact the 988 Suicide & Crisis Lifeline. Call or text 988, call 1-800-273-TALK (8255), or use the...
Mental Health Myths and Facts...There are many myths and misconceptions about mental health. Because of the stigma around mental health conditions, it is important to know the facts. This article aims to dispel these...
General Mental Health Resources...Living with a mental health condition may pose many challenges. It requires coping, finding treatment, and managing the impact of the condition on family, friendships, and work. Stigma can make...
ICD Codes: Why They Matter in Rare Disease...The International Statistical Classification of Diseases and Related Health Problems (ICD) is used worldwide to standardize the classification of diseases. It is used as a uniform way to collect statistics...Reactions0reactionsComments0 comments
Frequently Asked Questions About Mental Health...Mental health includes how you think, feel, and act. It can fall on a spectrum and vary for each person. You may have questions about mental health conditions, treatment options...
Coping With Mental Health: Psychotherapy (Talk Therapy)...Psychotherapy is also known as talk therapy, counseling, or simply therapy. Psychotherapy is used to help with a wide range of mental health conditions or challenges. Therapy sessions can be...
Coping With Mental Health: Medications...Treating mental health conditions with prescription drugs is common. About 16 percent of American adults take medicine for a mental health condition. It is not necessary to suffer in silence...
Complementary and Integrative Health...Complementary therapies and an integrative health approach are often used to treat mental health conditions. Complementary therapies include nontraditional therapies – such as acupuncture, meditation, and yoga – that are...
What Is Mental Health?...Mental health is the range of thoughts, emotions, and behaviors that affect your well-being and how you relate to others. Just like good physical health, good mental health is vital...
What Is an Orphan Drug?...Rare diseases are sometimes called "orphan diseases" because they are neglected by the medical community or affect very few people. "Orphan drugs" have many challenges in the development pipeline because...
What is a SWAN?...When your doctor suspects you have an illness, they may give you one or more medical tests to help them make a diagnosis. But what happens when the results fail...Reactions0reactionsComments0 comments
What Is a Rare Disease?...The definition of what makes a disease rare is different around the world. In the United States, the government says that a disease is rare if it affects fewer than...