Community Spotlight: Glycogen Storage Diseases...Glucose is an important sugar that bodies need for energy. The body packs small molecules of glucose into large molecules called glycogen...reactionscomments
Jenny Jones...Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS). She was diagnosed with FAP in...
Jessica Hanson...Jessica Hanson is a NYC-based actor, singer, yoga teacher, fitness instructor, social media manager, writer, blogger, autoimmune disease advocate, and cat lover...
Tatiana Corbitt...Tatiana Corbitt is a person living with Narcolepsy Type 1. She graduated with her Master's degree in Applied Biological Sciences and is...
Starting (and Sticking to) an Exercise Routine...Improving your physical fitness has a host of benefits, regardless of whether you have a rare disease or not. Walking, swimming, biking...
Ella Balasa...Ella Balasa is a patient advocate, consultant, and a person living with cystic fibrosis. She was diagnosed at 18 months old and...
Parenting While Managing a Rare Disease...Parenting can be incredibly rewarding. However, parenting is hard. Both parents and children are human, and there is no guidebook to raising...
Contact Us...Have a question? We’re here to help. Please email us at contact@raredisease.net. Please note that our team hours are Monday-Friday 8:30AM -...
Welcome to RareDisease.net Stories!...At RareDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with a rare...reactionscomments
Subscribe...RareDisease.net is the leading community for those with rare diseases. It's time to get the support you deserve and the information you...
Community...Have a question? Post it in our forums and ask our community! Share your story or read about others living with a...
Access Denied...Oh no! Something's not right. Due to security precautions, your access to RareDisease.net is blocked. If this is a mistake, please contact...
