Has Anyone Heard of Retinitis Pigmentosa? Rare Eye Disease Discussion

Hi everyone,
I recently came across Retinitis Pigmentosa (RP) , a rare genetic eye disease that affects the retina and causes slow, progressive vision loss. It typically starts with difficulty seeing at night and a gradual loss of peripheral vision.

Has anyone here or someone you know been diagnosed with RP or any other rare eye disease? I’d love to hear about how it was diagnosed, what the symptoms were, and how you're managing it. Also, are there any opticians in London or specialists you'd recommend for genetic or retinal eye conditions?

Looking forward to hearing your experiences or insights , this could help others dealing with rare eye issues.