Navigating Exercise with a Rare Disease: What works for you?

Living with a rare disease often means standard fitness advice just doesn't apply to you. We'd love to start a conversation about how you approach physical activity and movement.

What are your favorite ways to exercise or move your body? What are the biggest barriers you face (like fatigue, pain, or lack of guidance), and how do you adapt? Share your go-to modifications, victories, and frustrations so we can learn from each other!