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High red cells and tired constantly.

I have morphea and a spinal malformation, constantly sore points underneath each morphea patch, muscle spasms, tiredness and watery vision. I have a high red cell count, it's at the high end of being normal. I take 1500mg gabapentin daily and 50mg morphine sulphate twice daily everyday. I drink 2 litres of diluted water everyday and eat healthish. Anybody else have similar symptoms?

  1. Rest


    1. Thanks Donna for the comment.
      It will be two years in July since I was diagnosed. I was 79 and very angry for a couple of weeks that my life had changed. It has been a process to get to where I am today. I have a strong relationship with Jesus and believe all things happen for a reason. I started looking at the positives. I could have had ALS, as my symptoms were similar. Myasthenia Gravis can be managed, and I can live out my life. I accepted that fatigue did not mean I was lazy and embraced quiet activities on those days. I have a supportive family, church family, and friends. I still live life to the fullest with some changes. I have no other health problems. At almost 81, that is a blessing. I have a great team of doctors. I have no complaints.

    2. , I'm so glad to hear all of this. I am glad that you have come to acceptance, and to giving yourself grace on the hard days. It is wonderful that two years down the line you have found peace. Thank you for sharing <3 - Warmly, Donna (Team Member)

  2. I listen to gospel music.🎶🎶 I pray to God every day. I drink water all through the day. 🙏🙏❤️❤️❤️💜💜💜


    1. Listening to spiritually uplifting music and spending some time in prayer are lovely ideas.
      I have a coffee mug I will use on days I feel especially challenged... it says, "Pray more, worry less." Even just seeing it helps me at times.

      And, hydration is SO important!

      Thank you for sharing here!

      Gina Miller,
      RareDisease.net Team Member

  3. Listen to music & rest

    1. Many time High Red cells indicate low oxygen levels consistently or even just periodically like perhaps during sleep. The body produces more cells to try to carry more oxygen. IF you have not been seen by Sleep medicine or Pulmonary med, I would consider a consultation to discuss this and make sure there isnt something causing periods of Hypoxia.

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