Holidays with a Rare Disease
The holidays can be exciting but also come with many challenges for those with rare diseases. What special considerations do you have to take into account during this time of year?
I think about, especially with New Year's Eve, about my fatigue. Do I think I'll feel up to staying up that late to ring in the New Year and if I want to try it, what might be the best options for me to ensure I'm the most comfortable. For instance, my stepson wanted to attend a NYE party again this year so we arranged one with my best friends. Whether we hosted it or they did, I knew that I would feel the most comfortable at either of our homes and I can even take a nap at either home!
