Holidays with a Rare DiseaseThe holidays can be exciting but also come with many challenges for those with rare diseases. What special considerations do you have to take into account during this time of...Reactions 0 reactions Comments1 repliesCopingFriends & Family
Where do you find support?Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey, has the type of support you need changed...Reactions 0 reactions Comments0 repliesCopingFriends & Family