Taking a weekly Shot.
I have Giant Cell Atries.
Been taking a weekly Shot of Actemra Actpen.
My Med Insurance will no longer cover the cost and won't have the Shot .
Thanks!
Hi,
! Welcome to the Rare Disease community! I did some digging and I didn't come across any other community members living with GCA, unfortunately. There is some helpful information on the Vasculitis Foundation website -- https://vasculitisfoundation.org/education/vasculitis-types/giant-cell-arteritis/. Also, we have a sister site dedicated to Rheumatoid Arthritis and two community members there shared a bit about their experiences with Giant Cell Arteritis here -- https://rheumatoidarthritis.net/stories/glo and here -- https://rheumatoidarthritis.net/forums/multiple-symptoms. Ok, on to the part of your comment that gave me pause -- your insurance company denying coverage for your Acetemra Actpen. Has your doctor tried to talk with the company or file an appeal on your behalf? Is your insurance company wanting you to try a cheaper alternative? I really hate when insurance red tape impacts people's lives and health like this!
Best, Erin, Team Member.
Thanks for your message!!
Anyone have GCA ?
, anytime! Sorry I couldn't offer more help, but I hope the links I provided were worth the read for you.
Best, Erin, Team Member.
