My rare disease caused my kidney failure
I have a condition called FHx suggestive of Inverted Formin (INF2) mutation with peripheral neuropathy it is what caused me to have kidney failure and a bad disease called CMT. I'm still learning about it but I'm on three different pain medications for it as it causes me a lot of trouble but I also have a kidney transplant now.
I’m so glad you received a transplant! How are you managing after transplant? Personally, It’s been really interesting seeing more awareness around CMT after I learned about it in the late 2000s from my ex father in law’s experience with it! How are you doing with it, yourself?
, wow, that's a lot to deal with! Knowledge is power, do you find that you have an easier time dealing with your health, and your healthcare providers? - Warmly, Donna (team member)
