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Who has GI issues with CMT?

I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues?

  1. I have Scleroderma and I have Gastroparesis, constipation, sever reflux resulting in a modified Nissan Fundopillation in 2019. Since then I’ve had 4 dilations of my esophagus. Now I’m scheduled for repair of a Rectal prolapse. I also take Evoxac to help create saliva because my mouth is so dry and thee are y creates dental issues. Those are just my GI issues.

    1. Hi! While I don’t have CMT I wanted to chime in. I hope you hear from others in the community, but if you think you might be experiencing abnormal symptoms, I’d recommend chatting with your doctor about potential other/related conditions. Wishing you all the best, Jessica H (raredisease.net, team member)

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