How to Start Your Own Advocacy GroupAdvocacy groups are dedicated to a specific cause. They are made up of motivated members who come up with plans to make changes at the local, state, or even national... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments1 comments
What Is the Difference Between Still’s Disease, Juvenile Idiopathic Arthritis, and Rheumatoid Arthritis?Adult-onset Still’s disease (AOSD), systemic juvenile idiopathic arthritis (SJIA), and rheumatoid arthritis (RA) are all forms of arthritis that share many similar features. It can be hard to tell them... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What If I Am Resistant to Antibiotics for MAC?As many as 80 percent of typical MAC lung disease cases can be cured with treatment. However, in some cases, MAC germs develop a resistance to antibiotic drugs. When this... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
My Mental Health DiscoveriesContent Note: This article describes suicide. If you or a loved one are struggling, consider reading our suicide prevention article. Through my life with a rare disease, I've learned if... By Frank Rivera2 min readBookmark for laterReactions0reactionsComments0 comments
What Is Caregiver Burnout?Living with a chronic condition can be exhausting. Caring for others also can be draining. People with chronic disease and their healthcare teams often experience burnout. Other caregivers, like family... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What to Expect After a MAC DiagnosisBeing diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex (MAC) bacteria respond to prescription drugs (antibiotics) if... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Exercising When You Have a Lung ConditionShortness of breath and fatigue are common symptoms of lung conditions. These issues can make it hard to want to exercise. They can also make it challenging to complete some... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Coping with Grief During the Holiday SeasonEditor’s Note: This article was originally shared by our sister site, H-I-V-.net, and was written by Khafre Kujichagulia Abif. I can remember when the holidays became emotionally difficult. My father... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
5 Practical Tips to Thrive After a Kidney TransplantNot long after receiving my kidney transplant, I remember sitting on my couch, majorly uncomfortable and in pain after making the slightest movement. I was irritated with myself and those... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
My Rare Disease Journey With HemophiliaGreetings! My name is Shawn, and I'm happy to be a contributing writer for RareDisease.net. Maybe you are also living with a rare medical condition. Or perhaps a loved one... By Shawn Decker4 min readBookmark for laterReactions0reactionsComments0 comments
What Is the Social Health Network?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Nutrition for Lung HealthWhat you eat can play a big role in your lung health. Maintaining a healthy weight, partly through diet choices, can be especially important when you are managing lung issues... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
How to Navigate Online Doctor RatingsEditor’s Note: This article was originally written by Elizabeth Medeiros and shared by our partner site Psoriatic-Arthritis.com. The internet has changed how we do everything these days, from dating to... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments2 comments
Community Members Share Their MAC Lung Disease ExperiencesNavigating a MAC lung disease diagnosis can be challenging. There can be a lot of uncertainty and many questions that arise. It helps to keep in touch with your doctor... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Community Spotlight: Bleeding Disorders That Aren't HemophiliaInherited hemophilia is not the only type of bleeding disorder. Other bleeding disorders can appear similar to hemophilia but involve different abnormalities. Diagnosing a bleeding disorder requires blood tests. Blood... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What Is MAC Lung Disease?There are many types of lung disease. Some lung problems are caused by genetic issues like cystic fibrosis. Environmental exposures like cigarette smoke can cause lung disease, too. And certain... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Are You at Risk for MAC Lung Disease?MAC lung disease is caused by Mycobacterium avium complex (MAC) germs. MAC germs are all around. They live in soil, water, household dust, and some food products. Humans and animals... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
So You Have a Rare Disease… Now What?Being diagnosed with a rare disease can be shocking, even scary! When I was diagnosed with Narcolepsy Type 1, I was relieved to know what the source of the problem... By Tatiana Corbitt2 min readBookmark for laterReactions0reactionsComments2 comments
Asthma and Nontuberculous Mycobacterial (NTM) Lung DiseaseAn estimated 86,000 people in the United States live with nontuberculous mycobacterial (NTM) lung disease. And the number of people diagnosed with NTM – especially among women and older adults... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Community Spotlight: Glycogen Storage DiseasesGlucose is an important sugar that bodies need for energy. The body packs small molecules of glucose into large molecules called glycogen. Glycogen is stored in the cells of the... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments