Community Spotlight: Glycogen Storage DiseasesGlucose is an important sugar that bodies need for energy. The body packs small molecules of glucose into large molecules called glycogen...reactionscomments
Voting with a Rare DiseaseVoting is a fundamental American right, but it has special meaning for people with disabilities or health conditions. Until federal laws like...reactionscomments
When a Low Probability Feels ScaryI’m no stranger to autoimmune conditions. Let's take a look: I am among the roughly 1% of the population that has celiac...reactions1comment
How Exercise Kept Me Out of the Hospital Until I Was 26Editor’s Note: This article was written by Megan Barlow and originally appeared on our Cystic-Fibrosis.com community. I have always been active. Since...reactionscomments
Community Spotlight: Rare CancersRare cancers affect fewer than 40,000 people per year in the United States. These cancers make up about a quarter of all...reactionscomments
Finding a TherapistI’m a fan of therapy, but to be honest, I personally haven’t always found it to be helpful in the past. Perhaps...reactionscomments
What Is Gene Therapy?Genes are the pieces of DNA that make us who we are. They determine our eye and hair color, how tall we...reactionscomments
ICD Codes: Why They Matter in Rare DiseaseThe International Statistical Classification of Diseases and Related Health Problems (ICD) is used worldwide to standardize the classification of diseases. It is...reactionscomments
What is a SWAN?When your doctor suspects you have an illness, they may give you one or more medical tests to help them make a...reactionscomments
Genetics 101Our genes are like a recipe book for our bodies. They tell our cells what to do, how to grow, and how...reactionscomments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why...reactionscomments
Clinical Trial GlossaryClinical trials or studies have a language of their own. It helps to understand the common terms doctors use when talking about...reactionscomments
Clinical Trial ParticipationClinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of...reactionscomments
RareDisease.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on RAREDISEASE.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
