How to Be a Great Friend to Someone Living With a Rare Disease
What characteristics, behaviors, and kindnesses mean the most to you from people who are not living with a rare disease?
I agree. Empathy lets the person who is going through these trials feel validated and supported which is a relief. So many may think we are exaggerating how we feel or what we are unable to do.
Yes, empathy is so important. A friend who can accept what you are going through, without having to understand or qualify it is amazing. Thank you for sharing your experience. Warmly, Kathy (Team member)
Listening, paying attention, understanding what we are saying as tl.hkw we feel, what we can do, what our limitations are.
Thank you for sharing your experience. A friend who listens and understands limitations, without judgement, is wonderful. You may be interested in this article: https://raredisease.net/living/navigating-social-situations. All the best, Kathy (Team member)
Thoughtfulness
, what kind of thoughtful efforts are most needed? Thank you for sharing your thoughts! - Warmly, Donna (Team Member)
No.
