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Where do you find support?

Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey, has the type of support you need changed over time? Where did you find "your people"?

  1. My daughter, who moved from Florida to be with me. A sister who's a nurse, we talk daily. My Palliative team at the Joe Arrington Cancer Center.

  2. I have none not even my husband or daughter the sicker I got the worse they hate me and mistreat me is an understatement no support at all, my two bunnies that’s it. All day everyday

    1. , it is hard when you don't have support, especially from your family. Have you tried to find a local support group?

    2. , I'm truly sorry you don't have support at home. I know it's not the same at all, but I am glad you have your bunnies to offer you some love and companionship. I have had a few great bunnies, especially our old lop eared bunny named Sir Hoppy Hoppington.

      I do hope you are able to find some human support, as everyone deserves some support and empathy.

      Gentle Hugs, Erin, Team Member.

  3. I find support through my family and friends. Thankfully they all try their best to understand and are compassionate. It's really great.

    1. , I am really glad you have support and understanding! That's wonderful!

      Best, Erin, Team Member.

  4. At home

    1. , well, as Dorothy is the "Wizard of Oz" said, "there's no place like home"! And, I am glad that in your case, home is a place of support and love for you!

      Best, Erin, Team Member.

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