Where do you find support?
Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey, has the type of support you need changed over time? Where did you find "your people"?
Narcolepsy support websites
Neurologist, family, friends.
In GOD
When folks try to give advice about how I should fix it. The only thing I say is: I'll take it under advicement! Folks try to help because they don't get it or understand. I have Myasthenia Gr, and I'm still in control with God:😀 at 75 years!
, that is a gracious way to handle what can sometimes feel intrusive. Thank you for sharing. Do you find that people don't know much about MG? I'm glad that you feel in control. That is hard to accomplish many times. - Warmly, Donna (Team Member)
