caret icon Back to all discussions

Trying to make complex care feel less overwhelming

Trying to make complex care feel less overwhelmingI keep thinking about something I’ve seen over and over in complex care: the care itself is hard, but the coordination can become its own full-time job.

It’s the accumulation of little things that never stop coming: portal messages, labs, referrals, meds changing, insurance letters, forms, follow-ups that aren’t really follow-ups, “can you resend that fax,” “we never got that record,” “who’s tracking this,” “what changed since last visit,” and the constant pressure to retell the story clearly when you’re exhausted.

And what makes it even harder is that it’s rarely just one person holding it all. A partner, parent, adult child, sibling, friend — people step in and out, and the handoffs are where things get dropped. Not because anyone doesn’t care… but because it’s too much to carry in a notes app, a binder, a group text, and memory.

That’s the problem I can’t stop thinking about.

I’m building Onni Health because I want complex care to feel less like chaos and more like: clear, organized, shareable, and actionable — a place where the “whole picture” doesn’t disappear between appointments, and where updates don’t turn into a scavenger hunt.

I’m not here to pitch. I’m here to learn. If you’ve dealt with complex care, I’d really value your perspective:

- What’s the part that drains you the most?
- What tends to break first when things get busy or scary?
- What would “support” look like in a tool like this (and what would feel annoying or unrealistic)?

  1. Thank you , I am happy to hear from the team at RARE.
    Here's is our website: https://onni.health
    Check it out. We are giving early access to small cohort to try out our first beta. I would love to get the message out, so more people can help build tools that work for them! 😀

  2. I think you bring up great points and have definitely found a black hole of sorts that exists within the healthcare sphere, . I hope you get some helpful feedback on this and wish you the best of luck creating a tool that can make this aspect of healthcare much easier to manage for individuals, especially those with complex medical situations.

    Best, Erin, Team Member.

Please read our rules before posting.