Understanding and Managing the Non-Pancreatitis Symptoms of Familial Chylomicronemia SyndromeWhen people talk about familial chylomicronemia syndrome (FCS), they often focus on acute pancreatitis. This severe abdominal pain is a serious and...3 min read
What Is Familial Chylomicronemia Syndrome (FCS)?Familial chylomicronemia syndrome, or FCS, is a metabolic disorder. This means it is a problem with how the body processes substances to...3 min read
Genetics 101Our genes are like a recipe book for our bodies. They tell our cells what to do, how to grow, and how...4 min read
Strategies for Coping With a Rare DiseaseWhen you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have your disease,...3 min read
Keeping Your Medical Records OrganizedKeeping track of your medical records is essential for your health, especially when you or your child has a rare disease. With...3 min read
3 Ways to Help Professionals Understand Your Rare DiseaseAs our family's rare disease community (VAMP2) continues to grow, I am often frustrated with the professionals who are giving this diagnosis...2 min read
