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...Being diagnosed with MAC lung disease is overwhelming for many people. The good news is that most infections with Mycobacterium avium complex...

...Recently, a friend of mine, Fiona, visited her cardiologist. She has been having some troubling symptoms that have been going on for...

...In the delicate balance of raising siblings, the journey can take unexpected turns when one child is navigating the challenges of a...

...Living with a rare disease creates unique obstacles to healthcare. Specialist doctors understand rare diseases best, but sometimes you need emergency care...

...Living with a rare disease can be stressful in its own right. For example, many patients face a history of medical trauma...

...When my son received his rare disease diagnosis back in 2020, I was told about a private Facebook group for families. At...

...Living with hereditary angioedema (HAE) means you must be ready for a swelling attack at any time. Learning to give yourself your...

...While I started my medical journey when I was 8, it has taken nearly 30 years to understand the relationship between setting...

...Hereditary angioedema is a rare genetic condition. It is often called HAE. People with HAE experience severe swelling in different parts of...

...Hereditary angioedema (HAE) is a rare genetic condition. It causes sudden and painful swelling in the body. For many people, life-saving infusions...

...People with hereditary angioedema (HAE) may spend years searching for answers. The road to an accurate diagnosis can be long and difficult...

...When we experience chronic illness, particularly a rare disease, I believe it's common for us to have trouble not just providing ourselves...

...Advocacy groups are dedicated to a specific cause. They are made up of motivated members who come up with plans to make...