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...The parathyroid glands are small glands located in the neck next to the thyroid glands. You have 4 of them and they...

...Hemophilia is a bleeding disorder that prevents the blood from clotting properly. This can cause excessive bleeding, especially in the muscles, joints...

...Amyotrophic lateral sclerosis (ALS) is a disease of the nervous system that gets worse over time. It is also known as Lou...

...Amyloidosis is a rare disease in which an abnormal protein called amyloid builds up in the organs. The heart, kidneys, liver, spleen...

...Neuroendocrine cells are specialized cells with traits similar to both nerve cells (neuro) and hormone-releasing cells (endocrine). Neuroendocrine cells are found throughout...

...Living with a chronic health condition can be challenging, frustrating, and tiring. You might feel like your life is on hold. Frequent...

...Work can be hard when you have a rare chronic disease. Companies generally do not offer as much flexibility as is needed...

...It can be a challenge to eat healthy without spending a lot. And when you are living with a rare health condition...

...The quest for a rare disease diagnosis is often referred to as a "journey" or "odyssey." The reasons it may take years...

...When you have a chronic medical condition, there may be times when you are not able to work. This can seriously affect...

...Rare diseases are expensive. Anyone "living rare" likely knows that firsthand. Without a correct diagnosis, you may receive inappropriate care. Or you...

...Many people with rare health conditions can manage their pain using over-the-counter or prescription pain medicines, physical therapy, and exercise. But some...

...Pompe disease is a rare, inherited disease in which the body cannot process glycogen, a type of sugar. People with Pompe disease...

...Incorrect or delayed diagnosis of rare diseases is common. Because so few people have a particular rare condition, doctors you go to...

...Living with a chronic health condition may make working impossible at some point. Your symptoms can affect your ability to get your...

...Chronic pain is pain that lasts for longer than 3 months. Some rare diseases can cause significant pain in the body. This...

...Fabry disease is a rare, inherited condition caused by a mutation in the GLA gene. This gene is found on the X...