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...Rare diseases are sometimes called "orphan diseases" because they are neglected by the medical community or affect very few people. "Orphan drugs"...

...The definition of what makes a disease rare is different around the world. In the United States, the government says that a...

...Meditation is an ancient practice that began thousands of years ago. It originally was used as part of a person’s spiritual practice...

...When you are diagnosed with a rare disease, you might feel overwhelmed about what to expect. Because few people have your disease...

...Improving your physical fitness has a host of benefits, regardless of whether you have a rare disease or not. Walking, swimming, biking...

...Roughly 7,000 rare diseases have been identified so far. Of those, 8 out of 10 have a genetic cause. Understanding the root...

...There are between about 5,000 and 10,000 conditions that are called rare. The US Rare Diseases Act of 2002 defined a rare...

...Rare diseases present a special challenge to medical research. There are thousands of rare diseases. And more are being found each year...

...Parenting can be incredibly rewarding. However, parenting is hard. Both parents and children are human, and there is no guidebook to raising...

..."I just read that last chapter. Why can’t I remember what happened?" "I’ve never missed a deadline and just forgot a major...

...People with rare diseases sometimes have to deal with misconceptions other people have about what it is like to live with a...

...Editor’s Note: This article was written by Alene Brennan and originally appeared on our partner site Endometriosis.net. Because my health challenges started...

...A diagnosis that does not feel right or a misdiagnosis (as so often can happen with rare diseases) can be overwhelming. You...

...Managing a chronic health condition can take a financial toll on you and your family. Costs add up quickly from medicines, testing...

...Doctors are trained to "look for horses not zebras" when trying to diagnose someone's illness. The problem for people with rare conditions...

...Finding out that your health insurance company has denied a claim can be frustrating and complicated. Your insurance company must provide you...

...Gaucher (go-SHAY) disease is a rare, inherited genetic disorder. While Gaucher disease is rare, it is one of the most common of...

...Idiopathic pulmonary fibrosis (IPF) is a serious lung disease. It occurs when the tissue around air sacs (alveoli) in the lungs gets...