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Weird disorder that is causing a lot of pain and discomfort

I need help looking for a place to start researching whatever medical condition that has me bedridden almost all day and night. For some reason I experience varying amounts of pain during the day that have steady gotten worse over time even if I just lay in bed all day and if I try to go out into direct sunlight the pain gets so much worse. During nighttime the pain just seems to all but vanish but I'm so exhausted because of the pain during the day that I just sleep all night. And on top of that everytime I try to eat food I get incredibly sick. But I do manage to stomach a cup of juice every few days. Lots of tests have been run by doctors and all have come back negative. Also I having increasingly strange dreams that fade from memory the moment I wake up. Any help would be much appreciated

  1. Hi , That's a tough one, so many dosorders can have some of those symptoms. I'm sorry that your doctors have been unable to help. Have you contacted NORD? You can contact them at https://rarediseases.org/

    They may be able to help, or get you connected with a doctor who can. Please keep in touch and let us know how you are. - Warmly, Donna (Team Member)

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