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Read conversations, start a discussion, and connect with others about rare diseases.

Anyone have any advice about CIP?(Congenital Insensitivity to Pain)

I am the caregiver of a person with CIP. As he gets older, the challenges he faces have become more concerning. Does...

Looking for fellow giants

Hoping to get a better understanding of Acromegaly and find others with the condition.....

Unexplained Night sweats

I have been experiencing night sweat every night basically ever since my diagnosis with NMO. Im wondering have anyone else experienced un...

Does anyone have olgilvie syndrome?

Does anyone have olgilvie syndrome and what did Dr say prognosis was? This is very rare from what we were told....

Transitioning From Pediatric to Adult Care

Does anyone have experience with transitioning from a pediatric healthcare team to and adult care team? Do you have any tips for...

Blood Test

Had a Parathyroid Test today. Came back high. Should I be worried?...

What do you guys think this is

I have a couple of things going on but I don’t have a diagnosis yet but wanted to see what you all...

Addison's Disease

Most people have never heard of Addison's Disease or know what adrenal glands are and what they do. I have a little...

Hypoglobulimia

Just wondering how many others have this, mine was med induced....

Red rash in my mounth

I have red "rash" or something in her mounth for more then 2 months. What do you think this is?...

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