Parenting and Rare Disease: 5 Bonding Activities to Try With Your ChildIf you are caring for a medically complex child, it can be difficult to find ways to bond, interact, and keep them...reactionscomments
Parenting and Rare Disease: A Journey Through Grief and AcceptanceThe day my amazing little boy was born, I knew he was different. I was 22 years old and forced to grow...reactionscomments
Caring for Hudson: Q&A With a Parent Managing Hypotonic Cerebral PalsyThe best thing that has come out of being part of the rare disease community is the passionate, loving, and optimistic people...reactionscomments
What a Caregiver Means to MeI talked with an old friend from high school who just found out he has a rare disease about how much our...reactions4comments
Caregiver's LoveIt takes a special person to be a caregiver. There are different types of caregivers; some are partners, some are family, and...reactionscomments
