Persistence in believing in yourself.
It has been a long ten years. Ten years feeling like they were stolen only to realize that they were actually wrapped in persistence. That persistence is what has kept me alive and well. As well as someone with MPN-U can live.
I am so glad you hung in there and persisted,
! Pardon what may seem like a stupid question, considering your diagnosis, but how is your health, overall? I know you mentioned doing well, considering your MPN-U, but are you able to find doctors that have some knowledge about your rare disease? Are there treatment options that help you stay as healthy as possible?
Best, Erin, Team Member.
