How has living with a rare disease impacted you?

Those living with a rare disease are often the experts on their disease. To better understand the patient experience and realities of rare diseases, we are fielding our first Rare Disease In America survey. By taking this anonymous survey, you can help everyone better understand the real impact of life with a rare disease.

As a thank you, if you qualify and complete the survey, you will be given the option to enter a drawing to win one of five $100 e-gift cards.

Take the survey now: https://bit.ly/3WkL3dB