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Elle Cole

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Elle Cole is a mom of twin daughters. After she and her husband learned their daughter had sickle cell disease, she wished there was a guide to help parents and kids understand more about how the condition affects a person's body. Read more.
Keeping Your Family Connected When Raising a Child With a Rare Disease image

Keeping Your Family Connected When Raising a Child With a Rare Disease

Raising a child with a rare disease extends beyond medical hurdles – it encompasses emotional and familial challenges. The impact ripples through our entire family, influencing relationships and our day-to-day...

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By Elle Cole

3 min read

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From One Caregiver to Another: What I Learned After My Child's Diagnosis

"You are not alone." These are the 4 most common words I choose to tell another caregiver. I know how heavy it feels to receive the news of a child's...

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By Elle Cole

5 min read

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