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Frank Rivera

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I am Frank Rivera, a rare disease patient advocate, an Illumina Ambassador, A RDLA Patient Advisory Council Member, a pharmaceutical advisory member and ambassador,a speaker for the rare disease community as well as a patient of Sarcoidosis, I also have Sjogren's Syndrome, IBS, MS and Parkinson's. Read more.
What a Caregiver Means to Me image

What a Caregiver Means to Me

I talked with an old friend from high school who just found out he has a rare disease about how much our partners and caregivers mean to us. First, we...

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By Frank Rivera

4 min read

4comments

Caregiver's Love

It takes a special person to be a caregiver. There are different types of caregivers; some are partners, some are family, and others are friends. They all have a special...

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By Frank Rivera

4 min read

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Mental Health and Having a Rare Disease Is a Double-edged Sword image

Mental Health and Having a Rare Disease Is a Double-edged Sword

Having a mental illness is a double-edged sword. If you say too much, you're a complainer. But if you don't say anything, people think you are fine. Let me just...

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By Frank Rivera

3 min read

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My Mental Health Discoveries

Content Note: This article describes suicide. If you or a loved one are struggling, consider reading our suicide prevention article. Through my life with a rare disease, I've learned if...

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By Frank Rivera

2 min read

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