Common Variable immune deficiency
I was ill from birth. Was not diagnosed until 45 years old. I have damage to my lungs from many infections. Two sinus surgeries. Many sinus infections.
Thanks for introducing yourself to the Rare Disease community and sharing a bit about your rare disease,
. But, goodness, I am so sorry you weren't properly diagnosed until age 45. That truly stinks. Sadly, I think some of our community members can relate. One of our community members wrote about her diagnosis journey with CVID here -- https://raredisease.net/stories/when-stubborness-pays-off. I know you have endured sinus surgeries and probably other issues related to CVID, but how is your health at the moment? Is your health fairly stable at this point? How are your lungs hanging in there? Are you preparing for winter and the challenges that come with cold and flu season?
Pardon all the questions and please know you don't have to answer any of them, if you do not want to.
I hope you stay as healthy as possible and infection free this holiday season and into 2026!
Best, Erin, Team Member.
