Undiagnosed still but something is wrong
Hi,
I know there’s something going on, but doctors dismiss me, don’t listen, or tell me they don’t know what’s wrong but admit there’s something but tell me they can’t help me and to keep appointments with specialists. All I for sure know is I have a pituitary tumor. What do I do? It’s getting hopeless and taking toll on me mentally b
A persistent neurologist who saw me for 3 years before my positive lab work and repeat that work appeared for myasthenia gravis.
Persistence in a doctor is so important... I am glad that your specialist was able to finally diagnosis you and confirm the diagnosis.
, perhaps your specialists will learn what exactly is happening with you, too? Hang in there! If your mental state is suffering too much, please consider getting psych help to deal with the stress. We are only human...and we owe it to ourselves to do all we can to lessen our suffering. Hugs.
Gina (Team Member)
it took two years to get it right, but me not giving up and doing my own research to find out why I hurt for no reason.
Hi
, without knowing what symptoms you are experiencing, and which doctors you have seen, I tried looking for "who treats pituitary tumors", and I found this: "Endocrinologists, neurosurgeons, and nose and sinus surgeons are specialists who treat pituitary tumors." If you haven't seen these specialists, maybe have a conversation with your doctor and impress on them the necessity for referrals to professionals who can, hopefully, help you. - Warmly, Donna (team member)
