10 Questions to Ask Your Doctor When You Are Newly Diagnosed...It is often hard to know what to ask, or even where to begin, when you have questions about a new diagnosis...
What to Expect From Genetic Counseling and Testing...If you have a rare disease or one runs in your family, your doctor might suggest genetic counseling and testing. People get...
How Is Mucopolysaccharidoses Treated?...Mucopolysaccharidoses (MPS) are a group of rare genetic disorders that affect the body's ability to break down a particular type of sugar...
What Is Medical PTSD?...Post-traumatic stress disorder, or PTSD, is anxiety in the aftermath of a traumatic event. You may think of it happening to a...
Welcome to RareDisease.net Stories!...At RareDisease.net, we believe that we are stronger together than we are alone. Living with or caring for someone with a rare...reactionscomments
Building a Caregiving Team: Finding In-Home Help...Life with a rare disease can require extra at-home help and support. This care varies by person and ranges from skilled hands-on...
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