Dealing w more than one
Hi, I'm happy to have run across this email, community forum. I currently suffer with HS & also Hydrocephalus. These are two rare diseases. How did I get both... Guess I'm just as rare☺️. I was denied Social Security for Ihh and lost the.appeal. I'm reapplying years later ( Now) for this new rare skin condition I'm dealing with. I pray I finally get the help I deserve!
I only have Myasthenia Gravis.
I try to focus on one doctors appointment at a time for example in July I only had one day off with two and three appointments every single day. I literally just focused on the now instead of the past or future
, if you don't mind me asking, how did those appointments go? I do hope they were productive and helpful!
Best, Erin, Team Member.
One day at a time.
, that's the only thing we can do! Sometimes the days feel like being on a carousel going 50 mph, with no safety harness. So staying n board is a great achievement every day! - Warmly, Donna (Team Member)
Listening to reading online my Dr seems useless
And makes it harderSo I go by what works doing the best I can
Many times feeling hopelessThankyou Blessings 🙌
, I'm sorry to hear that your doctor is not trying to connect with you. Have you sought a second opinion?
Listening to your body is essential!. - Warmly, Donna (Team Member)
