Experience with Rare Eye Diseases like Retinitis Pigmentosa?

I recently learned about Retinitis Pigmentosa (RP), which is a rare inherited eye disease that slowly affects the retina and can lead to night blindness and tunnel vision. My family has a history of vision issues, and we consulted Dr. Stuart Terry, who explained the condition and the latest options for monitoring and managing it.

I’m curious to know if anyone else here has experience with RP or other rare retinal diseases. Which doctors or specialists did you consult, and what approaches or treatments helped you manage the condition? Any tips or personal experiences would be really helpful!