How to deal with extremely tough days?

That's a really good question, ! I think each person finds their own way to deal with the really tough days, but some of our members have written about how they cope and I want to share some of their thoughts with you. Here's one piece on the topic -- https://raredisease.net/living/getting-through-tough-days. And, while this is more on the topic of self care, I thought you might find the tips relatable -- https://raredisease.net/living/self-care-tips. Sometimes, the best you can do is hunker down and take care of yourself until the toughest of tough days pass. It's not easy, but you have to do what gets you through. Binge watch your favorite shows, snuggle in bed (if that helps), take a warm bath; whatever is best for you!

I hope you experience more good days than bad and please know you are not alone in this!

Gentle Hugs, Erin, Team Member.