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Read conversations, start a discussion, and connect with others about rare diseases.

West Nile Virus

Long term walking difficulty. Walk very slowly with a cane....

CIDP (Chronic Inflammatory Demyelinating Polyneuritis)

I was an RN but didn't know about this disease. I would love to hear from people who have it, what kind...

SMS

Does anyone on here have Smith-Magenis syndrome or have family members with it?...

How has living with a rare disease impacted you?

Those living with a rare disease are often the experts on their disease. To better understand the patient experience and realities of...

What could workplaces do to foster a more disability-inclusive culture?

What ideas do you have for employers to create a more supportive work environment for people with visible or invisible disabilities?...

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