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Read conversations, start a discussion, and connect with others about rare diseases.

10 Year old with medical mystery

Good Day Everyone My son has been sick for about 4 months. He is seeing doctors and was in the hospital more...

A Nauseating combo of disorders from birth only to worsen 14 years later

So Being born with the combination of ADHD, Autism and Tourette syndrome was bad enough only to have injury after injury then...

Feeling pure psychological discomfort after being on medication

Hi everyone! I am currently on Effexor, Seroquel and Risperidal. I have been on Effexor since Janauary 2024, Risperidal since March 2024...

Burning ear syndrome

I began noticing 1 ear red and not the other rarely both ears, the red ear will get warm...

Patient of HHT and Mom of child with HHT

I was diagnosed with HHT (a rare blood vessel disorder) in 2023 after 4 years of searching for answers. My son was...

Life with Rare Coexistence of Systemic Lupus and Ankylosis Spondylitis

Hello, I just curious to find the other 8 - 10 individuals living with the Rare Coexistence of Systemic Lupus and Ankylosis...

lichen sclerosus

I was having TERRIBLE itching in my genital area. i would explain my problem. they would say i must have vaginal infection...

Undiagnosed insane symptoms

1st time here. I desperately need help as to why I go numb and loss bodily function and become extremely dizzy if...

Healthcare navigator specializing in rare diseases

I’m a physician-turned healthcare navigator specializing in rare diseases. Visit my website and blog at maryrodriguezmd.com...

FATTY LIVER CANCER

MY CANCER WAS MISSED ON MY XRAYS 1 1/2 YEARS AGO AND NOW I HAVE A DEATH SENTENCE IS THERE ANYTHING THAT...

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