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Forums

Read conversations, start a discussion, and connect with others about rare diseases.

What could workplaces do to foster a more disability-inclusive culture?

What ideas do you have for employers to create a more supportive work environment for people with visible or invisible disabilities?...

Hope for Cushing’s Disease

I was diagnosed with Cushing’s disease in ‘98. Textbook case with everything effected. Pituitary resection lead to reoccurrence so I had Gamma Knife. I went into remission and ended up...

Who has GI issues with CMT?

I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues?...

Sweet Syndrome

Any other folks with Sweet Syndrome that would like to share their experience with getting a diagnosis and treatment?...

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