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Read conversations, start a discussion, and connect with others about rare diseases.

Hypoglobulimia

Just wondering how many others have this, mine was med induced....

Red rash in my mounth

I have red "rash" or something in her mounth for more then 2 months. What do you think this is?...

Workplace Experiences

Has your rare disease impacted you in the workplace? What kind of experiences (positive or negative) have you had with disclosing to...

undiagnosed with normal blood work

These are my symptoms and I just wonder if anyone else has the same thing and has been diagnosed with something where...

Doctor just said I have some random virus but am wondering if it is true or not.

So i went to the doctor today and they said I just have some random virus but do not know if it...

Numbness in fingertips, sensations in feet and head all depends on what I eat.

Started with numbness in finger tips, then to my feet feeling weird in the morning when I got up, now I have...

What does advocacy mean to you?

Advocacy can take many different forms - raising awareness in your local community, sharing on social media, and taking legislative action are...

How far do you travel for medical care?

In your diagnosis or treatment journey, how far do you have to go to see doctors and specialists you feel can help...

Grad School

Any tips for managing grad school with rare disease? I suffer from neuromuscular disease and it affects basically every part of my...

Environmental Allergies Or No

I'm dealing with something very weird. This is the 3rd time in the last 5 years or so. I have seen an...

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