Forums

Read conversations, start a discussion, and connect with others about rare diseases.

Exercise and Chronic Fatique and Pain

I have been going to physical therapy force weeks now after loosing excessive weight. I had severe protein malnourishment and severe muscle...

Caring for a child with a rare disease

This forum is for anyone caring for a child with a rare disease. Introduce yourself, ask a question, or share a story....

What is the most annoying unsolicited advice you've heard?

What annoying or unhelpful suggestions are you most tired of receiving (unsolicited!) from other people?...

Unknown Health conditions that is so discormforting

Hi, everyone I woke up one morning to notice that I have a burning sensation on one of my legs. I thought...

Undiagnosed still but something is wrong

Hi, I know there’s something going on, but doctors dismiss me, don’t listen, or tell me they don’t know what’s wrong but...

My Journey with Myasthenia Gravis and Lung Cancer

On an ordinary day, on a routine doctor appointment, I found out I had myasthenia gravis and lung cancer in one brief...

How safe are they?

UNDIAGNOSED RELAPSING NEUROMUSCULAR / NEUROLOGICAL DISORDER – SEEKING ADDITIONAL OPINIONS

Patient • Female • Age 45 • United Kingdom Overview The patient developed a slowly progressive neurological illness approximately three years ago...

Hypogammaglobulinemia

This disease has caused me to be allergic to many medications and some can kill me. Looking for oxidative help so that...

Do you consider yourself to have an invisible illness?

What aspects of your rare disease are invisible to others? Share in the comments below....

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