What could workplaces do to foster a more disability-inclusive culture?What ideas do you have for employers to create a more supportive work environment for people with visible or invisible disabilities?...Reactions 0 reactions Comments0 repliesWork & Employment
Where do you find support?Who supports you in a meaningful way? What does their support look like? As you have moved along your rare disease journey, has the type of support you need changed...Reactions 0 reactions Comments0 repliesCopingFriends & Family
Hope for Cushing’s DiseaseI was diagnosed with Cushing’s disease in ‘98. Textbook case with everything effected. Pituitary resection lead to reoccurrence so I had Gamma Knife. I went into remission and ended up...Reactions 0 reactions Comments1 repliesAwareness
Who has GI issues with CMT?I have severe constipation and gastroparesis with CMT. Does anyone else suffer GI issues?...Reactions 0 reactions Comments2 repliesDiet & Nutrition
Sweet SyndromeAny other folks with Sweet Syndrome that would like to share their experience with getting a diagnosis and treatment?...Reactions 0 reactions Comments0 repliesDiagnosis
